The lumbar punctures are exhausting. Emotionally, and physically. There is at least one more in my near future. The more I have them, the more I hate them. But its a necessary evil until everyone can feel certain my pressures are normalizing. Which doesn't appear to be happening.
The flip side is that my eye sight has improved some, we'll know by how much on Monday when we get another field of vision test done and see the ophthalmologist again. At the most recent follow up with the family doc she was sure to hammer home the fact that I may not be better yet, but I'm getting better. I have improved, just not how I may have liked - or as quickly.
This has been so difficult for me. I've had to lean on others more than what I'm normally comfortable with. I have to ask for help regularly, which is not easy for me. I get fatigued easier than I'd like to admit, and asking for help when I can't see well is so hard. It's been hard for me to even get used to the fact that I don't see well. Tripping over things, and if you're on my right side while in a parking lot or in a store its almost a guarantee I'll bump into you. I zig zag pretty bad if I'm not pushing a grocery cart, or holding someone's arm. Not to mention the fact that I obviously can't drive. Not being able to work and barely keeping up with my kiddo half the time is quite the contrast to the corporate working mom bit I was trying to keep up with. All of this change has been so overwhelming. All we can do is take it one day at a time and as best we can rest in the knowledge that He has a bigger plan that will come of this than any of us could ever imagine.
Thank you all, for your love and support.