Yesterday Kristina had a follow-up spinal tap to check fluid pressure and make sure the drugs are working. The results were somewhat disappointing. While we don't think there's an urgent need for action, rising fluid pressure means we can't drag our feet.
I'll be pinging the neurosurgeon in Little Rock first thing Monday morning to see what he thinks about her test results. We're also scheduled to follow up with our primary care physician Wednesday, but in all honesty, she seems to be learning about this condition alongside us. So she's primarily a referral engine, albeit a sweet and concerned one. I'm going to try to get Kristina in to see a second opthalmologist this week. I think we need another brain on this, and I have a great deal of confidence in the guy to whom I'll reach out. I have some gut-level question marks about the opthalmologist we've been seeing.
Physically, Kristina's pretty tender and sore from her third lumbar puncture in as many weeks. She's been run through the ringer. We're all emotionally exhausted, and the frayed edges are starting to show.
Keep on asking; keep on knocking.